Sibs’ Journey is a project founded by three young women on a mission to broaden the narrative of the sib experience. “Sibs” are the siblings of individuals with disabilities and at Sibs’ Journey we want to share stories, experiences, and resources to help sibs navigate through these complex relationships.
WHO WE ARE
We are Claire, Renee, and Ellie and we are determined to broaden the narrative for the sib community. Get to know us better here.
THE SUMMER ROAD TRIP
In the summer of 2013, the Sibs’ Journey team drove over 10,000 miles around the United States and interviewed almost 100 sibs of all ages about their experiences growing up with a sibling with a disability. The project took almost two months and the team interviewed sibs between the ages of 4 and 84 in 27 different states.
A CONFERENCE FOR COLLEGE-AGE SIBS
On the Sibs’ Journey summer road trip, we learned that Sibs long for a safe space to share their experiences but even more than that, they want more information – information about services and opportunities for their siblings as well as advice on how to navigate the system both with the help of their parents and independently.
We found that college-aged sibs are underserved and need extra support, as most are in a transitionary period in their lives. Most have never spent significant time away from their sibling and are beginning to feel more responsible for their sibling’s care and wellbeing.
We will leverage our experience and resources to put on a conference for college-aged sibs (18-30) to address these specific gaps. Our goal is to help sibs learn about resources, ranging from medical to legal to personal, and to explore the possibility of starting a national movement of young adult sibs. We believe that siblings our age have tremendous power to advocate for quality services for their siblings in the midst of budget cuts and shrinkages. Ultimately, we hope to create a community of sibs that can learn from and rely on one another.